Monday, October 31, 2011

Trick or Treat!


Ahhh. I love the time of year when we choose, gut, and carve big orange gourds.....


...while watching black and white corny old horror movies. Have you ever seen Bucket of Blood from 1959 and directed by Roger Corman? It's so completely bad that it's hilariously good.


Emsie tried on my 1978 student nurse uniform for costume potential.


 Here's the spectacular results of John, Greg, and Emsie's carving talents. (Terese and I supervised.):


Greg produced yet another brilliant Schnauzer pumpkin. What a Jack - O - Lantern genius.

Happy Halloween, everyone!

Sunday, October 30, 2011

They Know Who I Am

I'm liking my new fitness center very much. The schedule works well for me, it's close by, and as I've mentioned before, the facilities are great.

As part of the orientation for new members, I was given a thirty minute personal training session last week. My trainer was a trim, athletic, youthful thing. At first glance, I wrote her off as someone who would be bored silly by working with someone as out of shape as me.

So, I was wrong. Yet again. What a surprise, hm?

Turns out that since this club is focused on members aged forty five and older, she has worked extensively with people that have much more difficulties than I. As a leader of an exercise group for people who deal with Parkinson's disease, her experience was evident in her patience and confidence as we worked the circuit of machines in the exercise room. What a relief to meet someone who understands the challenges that exercise intolerance brings.

She created a folder for me which detailed our plan and documented the adjustments that I should be making on each machine to ensure that I am in the correct posture while exercising.

Cool.

And now that I've been going for a few weeks, several people have approached me and introduced themselves. The staff at the front desk know me by name. My aqua arthritis class teacher invited me to join the other members of the class to join them on a lunch outing.

WAY cool.

One of our class members brings her guide dog along, and she usually sits patiently by the side of the pool during class and watches her owner. (Although this is not a photo of her, but yikes. This puppy is a carbon copy. Awww. Picture of this guide dog named Hesper found here.)


This doggie has taken an interest in me, specifically my head. Yes, my head. She ambles over to me when we are doing exercises which require us to grasp the side of the pool, and looks deeply into my eyes. She sniffs me. She paws at my shoulder. She has even given me a big slobbery kiss on the crown of my head a time or two. The first time this woogie and I met poolside, the class had to take a break as we all broke out into laughter. I love it! Wonder why she singled me out among the group and what she finds so interesting....maybe I should shampoo more often? Maybe I don't want to know. I'll just enjoy her attention.

I believe there's one slight downside to all of this camaraderie,  however......

They know who I am. They know how often I come (or DON'T come) to class. "What days are you coming next week, Julia?"

Um. You know, I'll have to see how things go...

"I usually come three days a week. It really helps MY arthritis if I'm here regularly."

Thanks. Good to know. Dang.

I thought I was too old for peer pressure.

Saturday, October 29, 2011

Pumpkin Gutsy

We're carving pumpkins over here. We have high pumpkin standards, but still.....I don't think we can match the amazing efforts by pumpkin sculptor Ray Villafane.


Wowsers. Head over to his website to see more of these amazing creations.

Friday, October 28, 2011

I'm Anthropomorph-izing Again

My Goldie looks just like this after she's had a spa day. This Goldie's pic was found here. 

Gosh, I had fun last night.

John and I had been out shopping, and he dropped me off in front of our mailbox, which is about a half a block from our house. The minute I stepped out of the Prius, Goldie started her warning beep which meant that I had taken my computer chip key with me. Goldie doesn't need an actual key to be inserted anywhere, the driver just has to have the computer chipped key fob inside the car. Or very near the car. Pretty spiffy.

Yep. This is it.

 I just hop in with the computer chip inside my purse, push the ON button and away we go. This device is pretty smart even when I'm pretty dumb. It won't allow itself to be locked inside the car, and if a kid climbs into the car and pushes the start button, it won't start unless the person is big enough to have a foot on the brake AND a finger on the button, AND the fob in the car. Slick. When I have to drive our other standard-put-the-key-in-the-ignition-and-turn-it vehicle, I have issues remembering what to do.

So. After I had collected our mail, I dangled the fob in front of John and the complaining Goldie.

"Here Goldie! Here, Goldie!" I stood just close enough that she recognized the computer chip, and she silenced her beeping and rolled silently forward, using her batteries. I trotted ahead with my car on an electronic leash. Good thing John was still behind the wheel.

Probably also a very good thing that it was late and very dark and most of our neighbors couldn't see or hear us out in the street. I hope.

"Who's my favorite car? Who is it? Is it GOLDIE? Yes it is! Yes it is! Goldie is my favorite cutie wootie car!!"

If I got too far ahead of her, she'd start beeping, so I'd take a few steps back, after which she'd happily follow me again. Now THAT'S real fun, people.

It's a very very good thing that my husband tolerates his wacko wife's antics. I figure I have to look for weirdness wherever I can, and when I find it, it makes me very very happy, which is also a very very good thing.

We tucked Goldie safely away in her garage stall for the night. Sweet dreams, little car. See you in the morning.....

Thursday, October 27, 2011

Hey, Me.

I received this as a forward, and in spite of it being just a bit crude, I like the sentiment.

Wednesday, October 26, 2011

I've Got a Beanie Baby And I Know How To Use It

Guys. Y'all have to STOP WHATEVER YOU ARE DOING and head over to read this post from Doc Gurley entitled 10 Creative Ways To Get Your Doctor To Wash His Hands.

It's a serious topic - avoiding MRSA infections, specifically avoiding acquiring this nasty germ from your doctor. 

But of course, since it's written Doc Gurley, she approaches this very serious topic with wit, sarcasm, and a healthy dose of humor. My kind of gal.

Here's two of my favorites from her top ten list, but go read them all.
- Bring a roll of blue tape to your appointment. Make a blue-line circle around yourself on the floor, at least five feet in diameter. This approach has the added benefit of giving you something to do besides reading a June 1997 Parents magazine during your hours of freezing semi-naked in the exam room. When the doctor finally arrives, say, while looking up over the top of your wrinkled magazine, “Hi. Just waiting for you here in my clean hands zone. If you’d like to join me, the sink is over there.” 
- Bring a beanie baby and a pair of scissors with you to your appointment. Stand in the far corner of the exam room. While you wait, muss your hair until it is wild, re-button your shirt so that you skip a few buttons, and practice having an eye twitch. When the door opens, hold the tip of the scissors to the soft furry neck and shriek, “Either wash your hands or the beanie baby gets it! We’re talking millions of tiny plastic beads spurting all over the floor! Don’t make me do it!”

You can buy your very own Chippette Chipmunk beanie baby here.

Tuesday, October 25, 2011

Sjogren's Syndrome and Insurance

My recent post entitled Will My Daughters Inherit My Autoimmune Disease? elicited this comment by C. yesterday. I thought it was a great question. Here it is:

Just found your blog, and am so grateful!
I have tested positive for Sjogren's, my mom has it, and now my daughter (in her early 20's) is showing symptoms.Here's my question...should she be tested? I know this sounds like a ridiculous question, but my concern is her health insurance. She's still young, I don't know if health reform will take place if the current admin loses the WH... .She's currently on our health ins. but she'll lose that at 26 (TY Obama for the extension to 26!) I'm worried she won't be able to get a new policy if she's diagnosed with a long-term chronic illness, particularly as she's already diagnosed with celiac. I'm told that realistically, when my COBRA expires soon I won't be eligible to purchase insurance because I have pre-existing conditions.
Would be glad to hear yr advice. - C.
C., this is not a ridiculous question at all. Health insurance issues are so difficult, to put it mildly.

It sounds to me as though C. has two questions: Should she push to get a diagnosis for her daughter now, or after she has an insurance plan of her own? AND, Where can C. find health insurance for herself after her COBRA expires?

In answering the first question regarding the daughter being diagnosed, here's my opinion, and remember that this is only my opinion. This would be a great question to discuss with your doctor as well.  If your daughter already has SIGNIFICANT symptoms of autoimmune disease in her twenties, she should seek a diagnosis. If she comes up negative, then at least for the present, she wouldn't have to worry about adding Sjogren's syndrome to her pre existing condition list. If she DOES test positive, then she should be treated. Early intervention in Sjogren's syndrome is important, especially if your daughter plans on having a family at some point since extra supervision during a pregnancy would be necessary. Also, since Sjogren's syndrome is a progressive disease, early intervention may help slow that progression from the start. The stretch from "early twenties" to age twenty six is several years, which would be a long time for un-checked autoantibodies to do damage.

As for the insurance question, (and this applies to US citizens):

First -- Don't assume that these conditions would be uninsurable without checking around. I made a call to my insurance program and was told that it could be possible to insure a young woman with celiac disease but also was advised that without a great deal more information, the representative couldn't give me an exact answer, which of course was understandable.

If you are disabled due to your diseases, have worked and contributed social security taxes, and are receiving disability SSDI, you are automatically eligible for Medicare part A. You can purchase Medicare part B to supplement A and the cost is usually much more affordable than a stand alone policy. You can read more about Medicare here.

If you don't qualify for Medicare, and can't find an insurance policy that would cover your pre-existing condition or is too expensive for you to afford, there is another option:

The Affordable Care Act  provides options for affordable health insurance for many who would otherwise be unable to be insured -- including those with a pre-existing condition. It was initiated in March of 2010, and you can read more about it here, and here, and specifically for pre-existing conditions, here. You can apply online, or by telephone at 1-866-717-5826: (TTY: 1-866-561-1604).

IMPORTANT: You can only enroll in the Pre-Existing Condition Insurance Plan by applying for coverage using the methods described on their web page. Do not respond to phony calls or letters asking you to enroll for a fee.

The criteria for qualifying for these plans vary from state to state and of course, by each individual's situation. Here's a video describing the application process:


Readers? Any other thoughts or suggestions?

*addition to post*: Reader Wendy pointed out an important insurance option for United States citizens that I SHOULD have included: SSI, which is a government program that provides assistance to disabled adults and children who have limited income and resources. These members may be eligible for the federal/state program Medicaid, which provides health care coverage. You can read more about Medicaid here and here.

Thanks, Wendy.

Monday, October 24, 2011

Twinkly Year Two

Do y'all remember last year's Light Fantastic show which was wired to, nailed on, glued to, and generally inflicted upon our house?

Wizzards of Winter - Christmas Lights from John Oleinik on Vimeo.

My son and John are busily planning the new and improved Light Fantastic over here. I know - seems early. But these gargantuan projects take time.

I was assured last year that Next year will be so easy because we'll have all this stuff assembled already!

Uh huh. I was skeptical. Because these guys can't leave anything alone. And I was right -- the measuring and planning and ordering is in full swing.


Did YOU know that someone invented a teensy led light bulb that has it's own tiny computer chip and has the capability to turn a zillion colors because it would be connected to a computer? Independently of the other teensy light bulbs that are next to it on a whole long string of them?

I did not know that. But it appears we're going to be owning several strings of these lights, and they are this year's addition.

This is going to be very entertaining. Stay tuned.

Sunday, October 23, 2011

Bubbles

My son gave John quite the Father's day gift last June. Know what this is?


I didn't. Until my ecstatic husband informed me that it was a keg-erator.

Kegerwhat?

Turns out that it's a device that cools, carbonates and dispenses beer just like the ones at our local pub. So now our Bearded Dog Pub (formerly known as our son's bedroom but now a billiard, foosball, dart, and tv room) has a local micro-brew on tap.

John and Greg love it. It will probably take several months for them to drink the stuff, but in the meantime, they have a new project, and these boys LOVE a project.

Aside from the enjoyment of quaffing a few beers served straight from the tap in a frosty mug, the guys find this thing quite entertaining. As in tinkering with, cleaning of, and otherwise fiddling with.

Tools. The guys need lots of tools..... 

And more importantly, The ongoing research involved in choosing the next.....barrel? Quarter barrel? Pony? Growler? What's the difference? I have no clue.

.....because they like to mess with stuff like this. 

I think it's great that our pub actually IS a pub. However, since I can't (thanks, methotrexate..) drink and actually don't like beer all that much, I was feeling bubble envy.

I love carbonation. I wanted carbonation, too, just not carbonated beer. So I found this gadget that is a great Julia addition to the pub:


It has an itty bitty Co2 tank attached, and carbonates plain filtered water. I like to make up a liter of fizzy water and add just a bit of organic fruit juice. Refreshing, yet not artificially sweetened and low in sugar. Mmmm.

 Bubble-y.

Saturday, October 22, 2011

I Do Indeed Own Them........

Yes, Mom. They're mine. 

So yesterday I was flouncing around in my new health club after the aqua arthritis class. I was showering and changing and enjoying the amenities of the new place: larger, brighter showers with actually warm water, the absence of signs warning patrons not to drink the toilet water, a hair dryer at the vanity, etc.

I finished my shower, and began putting on my clothing in my spacious private changing area, when I noticed that I was missing one vital item.

Yes. My underwear.

I thought about just pulling on my jeans without them. Who would know? They're firm tummy control undies, but still. You think anyone would look at me in my jeans and say, Girl. You forgot your tone 'n trim underwear today... Tsk tsk tsk? Well, I'm certain that some would think it, but I wouldn't expect to be taken to task about my lack of foundation wear.

I had one foot in my pant leg when I heard, "Who's underwear?"

Oh, man. I sighed and wrapped myself up in my towel, headed back to the locker room, and shamefacedly retrieved my pink panties which were delicately being held up by a good samaritan.

Oops. Must have dropped them on the way to the shower. Thanks.

I knew better than to deny ownership of said panties. Because I had tried this maneuver once before and my mother-in-law will never, ever, in a million years, let me forget it. Actually, looking back from the perspective of thirty some years ago, it was a mildly humorous incident.

::indignant sniff::

John and I had only been married for a year or so, and on one of our frequent visits to his parents' house, as I was packing up our stuff to leave, I must have left a pair of my underwear behind. (No pun intended.) We said our good-byes and went our merry way.

The next time that we visited, I was aghast to see my undies placed prominently on their foyer bookshelf, which is where my mother-in-law places all of those things that her zillions of grandkids, and kids, and daughter-in-laws may have left behind.

Oh, brother. My undies were stacked right in there alongside a mismatched sock, a pair of tennis shoes, and a book or two.

I pretended that I didn't see them. Wouldn't you??

I should have snagged them when nobody was looking. But no.

So as everyone was leaving after the weekend was over, Mom took her place by the front door and hugged everyone good-bye. There were lots of us. John comes from a huge family.

As each person got their hug and headed outside, Mom would point to the lost and found bookshelf and ask, "Are any of these things yours?" and each and every one of us would deny ownership. She picked up my panties and held them up high. "WHO'S UNDERWEAR?!?"

Not mine. Nuh-uh. Never seen 'em in my life. Gotta run! Buh bye!

How embarrassing. Those underwear sat on that bookshelf for at least six months. And each time we'd return she'd wave my panties as we left and challenge any of us to claim them.

Mom decided to finally throw them away as she and Dad hauled in the Christmas tree. They weren't festive enough, she said.

So the left-behind underwear incident became a story that became a family favorite.

"Har har har! Remember when Mom spent six months waving around someone's underwear? Snicker. Snort."

Oh, yeah. A real barrel full of laughs, guys.

After John and I had been married for twenty five years, I figured the statute of limitations on really embarrassing experiences had expired, so one morning over breakfast, I confessed that the famed underwear were mine.

She calmly sipped her coffee. "I know. I knew all along. I picked them up from your and John's bedroom."

We both laughed until we cried. I should have known that I could never have pulled the wool over the eyes of a woman that had raised ten children.

But I learned my lesson. Ever since, I always claim my underwear. Especially at my mother-in-law's house.

Friday, October 21, 2011

New Saliva Diagnostic Potential for Sjogren's Syndrome

Image found here. 

UCLA made the announcement yesterday of the receipt of a grant from the NIH for this exciting study:

The UCLA School of Dentistry has now received a $2.8 million grant from the National Institute of Dental and Craniofacial Research, part of the National Institutes of Health, to support a multi-center clinical trial of a diagnostic test that uses patients' saliva to determine whether they have Sjögren's syndrome. This simple, non-invasive test will permit a diagnosis within minutes, rather than the weeks currently required when using blood or other tissue samples. 
The project will be led by Dr. David Wong, associate dean for research and the Felix and Mildred Yip Endowed Professor in Dentistry at the UCLA School of Dentistry. For Dr. Wong and his colleagues, who have been conducting research on using saliva as a diagnostic tool for biomarkers of oral cancer, early-stage pancreatic cancer and other maladies for several years, this is an important step in moving from the research realm to actual clinical trials and, eventually, to use by medical and dental practitioners. 
"This clinical trial will make it possible to validate the effectiveness of salivary diagnosis and move us a step closer to eventual FDA approval and clinical product development," Wong said. "The establishment of scientifically credible biomarkers for this chronic autoimmune disease that are not invasive, painful or embarrassing is our goal."
Hm. Scientifically credible biomarkers.....not invasive, painful or embarrassing. I like it. A lot. The article continues:
"The UCLA School of Dentistry is very proud to be at the forefront of this international effort to advance the field of saliva diagnostics from the research laboratory to clinical trials," said No-Hee Park, dean of the UCLA School of Dentistry. "The prospect of early detection of Sjögren's syndrome, and possibly other serious illnesses, in the future through this methodology is truly exciting."
Yes, it IS exciting. Go get 'em, guys and gals.

Thursday, October 20, 2011

She CAN Be Taught

So my iPhone and I are getting along much better these days.

We've come a long way in our user/phone relationship since the day that Bev and I were commiserating over lunch about our iPhone skill deficiencies. We kvetched and complained over lunch for a good two hours, much to the amusement and possibly some irritation of all of the other more iPhone savvy customers seated around us.

But I've learned a great deal since then, and from some interesting sources. Of course, family and friends have provided great coaching. My nephew's wife in particular has provided excellent tips couched in incredibly tactful phrases.

I love that girl. And not just for her techno-skills, which are superb.

The latest tutoring session came at an interesting price in an unusual place. I was doing some shopping, and decided to treat myself to a smoothie. After I placed my order, two young men walked in and also ordered. One chose the same smoothie as I had, only in a smaller size.

So my order came up and the server called out the name of the drink then slid it across the counter into this young man's hand, who took it and sampled a great big slurp. He commented to his friend, "Wow! That was quick!"

The other two smaller smoothies showed up next. I thought about this for a bit and realized that this kid had definitely scooped up my smoothie. I really didn't need the extra calories, but still, I HAD paid for that bigger cup.

I sat looking at the smallish styrofoam cup when the smoothie bandit took out his iPhone.

::lightbulb moment::

I cleared my throat. Excuse me, but can you tell me what size smoothie you ordered? Because I think you picked up mine by mistake.

He looked at his drink, and then at the size of his friend's drink, then flushed bright red with embarassment. "Oh, man! I'm so sorry. Aw..and here I've been slugging it down like crazy! Wow. I'll buy you another one..."

He began digging around in his pockets and counting his change. His friend took out his wallet and they put their heads together counting their money, all the while apologizing.

What nice boys.

No, really, you don't have to do that, I said.

The server got into the act. "Oh, lady, I'm sorry. I gave your order to somebody else. I'll make up a new one for you!"

Guys. Really. It's OK.

Pause.

I want something other than a smoothie.

The look on this kid's face was priceless. I would say it was a combination of skepticism and terror. "What? Um, what did you say?"

I laughed. Look, it's nothing TOO weird. I just got an iPhone and I noticed you have one too. Would you mind showing me a few things - kind of like a phone lesson - in exchange for the smoothie?

I could see him mentally digesting this little exchange, still a bit cautiously. He and his friend exchanged glances.

"Um. What do you want to know?"

I was encouraged that he didn't roll his eyes. Well. I slid my chair across to their table and pulled out my phone. What's some of your favorite apps? And how do you get the google navigation thing to work without letting them know EVERYTHING about where I am? And do you use a different chat/message app than the one loaded? How do I incorporate all my contacts and blah blah blah blah blah blah blah.....

Within seconds, we had our heads bent together over our phones, slurping and talking and laughing. Before I knew it, one of the guys looked at his watch.

"Oh, yikes! Hey, we've got to get back to school!"

Wow. We had been talking for a good forty five minutes. I waved good-bye as they raced out the door while slinging their backpacks over their shoulders.

What fun. I finished my drink, smiling. I wondered what they told their friends when they got back to school? I could just imagine...

"Sorry we're late! We were helping this old lady with her cell phone! Honest!"

If I were their teacher, I wouldn't have believed it either.

Wednesday, October 19, 2011

The Swimming Must Resume

I wonder if they'll notice that I'm gone.

Who?

The senior water aerobics class ladies over at the community center. Don't jump to conclusions, here. I'm still going to be swimming. But after some careful thought, I've reluctantly decided to change pools.

So it's goodbye to this beautiful building and setting:


And hello to this one:


Here's the thing. After Terese and I joined the community center, John thought it was such a dandy idea that we got a family membership, with the idea that he'd join me over there on occasion. But on the few times that he jumped into the pool with me, it was early evening or on the weekends, which meant that the place was over-run with very small splashing, shouting, and running amok children, God love 'em.

John was not amused. He hasn't been back since. He loves kids, ours especially, but doesn't particularly want to swim with everyone else's kids. When they cut across his swimming lap lane while bashing another kid over the head with a soggy noodle floaty and screaming bloody murder, for example. He says it messes up his stroke rhythm.

I can't say as I blame him.

Then there's the fact that the center is across town and is located smack dab in the middle of a five year road construction project. I'll use any excuse possible to not exercise, even those little inconveniences such as waiting for a flagger to move traffic along. Every stinkin' time. Which takes forever.

So it's been awhile since I've tossed my stuff into one of the community center's pool lockers. But this has to change.

John and I mulled the swimming and exercise deficiency issue over coffee one night. One thing was certain, we were going to drop the family plan fee over at the center, since John's two swims probably cost us....um....well, more than I care to remember. John knows, however. He keeps track of EVERYTHING. But then that's a post for another day.

OK. Single membership. I'm fine with that. We moved on to the other reasons that I'm just not heading that way recently. John suggested that I look around and compare prices and facilities around town. So I've settled on a health club which is located in a senior retirement center, to my surprise.

For the same price, this health club offers public memberships at about the same price as the community center, minus the rambunctious kid factor. AND provides generously sized fluffy towels, AND free locks on their lockers. AND no chewing gum stuck to the edge of the hot tub. It's much much closer to our house, and certainly won't be surrounded by bulldozers and detours any time soon. I hope. What a deal. I'm heading over for my first swim there today. I'll keep y'all posted.

Good bye, you wonderful wise-cracking SWAC gals. I hope I meet another set just like you over at my new pool.

I hope the new ladies don't moon me.

Tuesday, October 18, 2011

Going Out In Style



My sister sent this picture to me the other day. She and her hubby have a cabin on a lake in northern Wisconsin. They were there to "put the cabin away" for the winter - pulling in the boats and docks and winterizing the cabin.

She said that it's always sad to think that summer has come to an end, but I think if it has make way for winter, how cool for it to go out in a blaze of fall colors!

Monday, October 17, 2011

Will My Daughters Inherit My Autoimmune Disease?

daughters-quotes-graphics-6
Daughters Quotes | Forward this Picture


It seems to me that the Moisture Seekers Newsletter, published by the Sjogren's Syndrome Foundation, just keeps getting better and better. 

I just received the October 2011 edition in my mailbox, and this issue is packed with great information. I especially enjoy the Q and A sections since the questions are all very pertinent and the answers written by medical experts. You can receive the Moisture Seekers newsletter for free by becoming a member of the Sjogren's Syndrome Foundation, which is as easy as going to their website, here.

As the mom of two daughters, I read this particular question and answer with great interest:

Question: I understand that autoimmune diseases can occur in families and I am concerned that my daughters may develop Sjogren's or another autoimmune disease. What is the recommendation for testing for autoimmune diseases?

Answer: Nancy Carteron, MD, FACR: The second question is the easier to answer. NO routine screening is helpful for the "future, potential" risk of developing Sjogren's. The most helpful thing is to be familiar with the myriad of potential symptoms/signs of Sjogren's and related autoimmune diseases/disorders. If any concerning signs develop, then one can start the investigative process. As someone with Sjogren's, you probably have experienced that this is not often a simple, straightforward process. There is no reason to be over-worried, as it is not highly likely that your daughters would develop the same autoimmune process as you.

Yes, there is a genetic component for all autoimmune diseases. However, it is very dilute because multiple genes (polygenetic) are involved. Historically, the HLA-DR3 (histocompatability) type has had the tightest connection with Sjogren's. HLA-DQ1/DQ2 has some association with more severe Sjogren's. Also, genes are modified by the environment, medications, viruses, etc. thus adding even more complexity to the susceptibility of autoimmunity. This process currently is an active area for research and is referred to as "Epigenetics" (gene modification).

The strongest genetic association is actually just the increased risk of developing autoimmune reactions in general. If a family member has Sjogren's, then there is a ~ 30 - 35% chance of developing an autoimmune disorder (PMID (Pub Med) # 12453311). Furthermore, it is usually some other disease, not the same on the the family member has.

Worrying will not help or change anything for your daughters. We know stress (different for different people) can trigger the immune system in a way to start an autoimmune process or make it worse. This is a further reason to be informed but not worry about it.

Sunday, October 16, 2011

Be It Ever So Humble....


.....there's no place like home.

Last night, we went to Mass and then out to dinner with friends.  The major topic of discussion was our trip to the midwest. Terese and Greg and John and I shared our adventure stories and anecdotes amid gales of laughter and between bites of Chinese food.

I smiled so much that my cheeks hurt. How wonderful to have enough energy to be upright and relatively coherent, and able to actively participate in the lively conversation. We lingered over dinner for almost two hours, until finally everyone began yawning and had run out of stories.

As John and I drove away, suddenly I realized that even though I had traveled back to see extended family members that I cherish, when I returned, I came back HOME. These people - this place - this little town - this little church - is my home. We've lived here in this house and this city for fifteen and a half years, the longest by far of any of the places that John and I have lived since we were married. And for good reason: this is the place that we have been able to create the best balance between family/work/friends/and faith for our children and ourselves.

I often wonder what the course of my disease may have been had we been living elsewhere at the beginning of my autoimmune adventure. I may not have had such excellent medical care and quick diagnosis, or such supportive friends, or the blessings of John's stable job to ease me through difficult times. Even this wonderful moisture-laden Pacific northwest environment is soothing to this sjoggie.

Ahh. It's so good to be home.

Saturday, October 15, 2011

Creatures of Comfort



Terese asked me yesterday if I was "among the living".

I had to think about that before answering.

Hm. Let's see: I believe I had a shower..... Yes, yes, I did. But I crawled back into bed after and slept until noon. Then I got up and had some lunch, let the schnauzers out to do their doggie things and back in, after which all three of us returned to bed for an afternoon nap. Which is not to be confused with the after supper snooze on the couch, also accompanied by said schnauzers. Who needs a comforter when one has Maggie and Lulu?

I told her that I believed that I had at least one foot among the living. The rest of me is still off in crash-land.

Sigh. So frustrating, isn't it?

I know that by pushing myself too soon, my payoff will only be lengthening the crash. But if I burrow under the covers indefinitely, my body will become accustomed to a total lack of activity, which makes getting back on my feet even more difficult.

So I find myself testing the energy waters with some trepidation. Today: still needed the morning till noon nap, BUT managed a short trip out for a few groceries. With Maggie and Lulu, of course. After which I plopped down on the couch and was immediately covered by schnauzers.

They're the best crash buddies EVER.

Friday, October 14, 2011

Analyze This

Image found here. 

Y'all may recall that awhile back, I asked readers to participate in a survey sponsored by WEGO Health.

I've been reviewing the analysis, and I want to thank you all for your very generous comments! I received the results while I was on vacation on one of my resting days. It was a wonderful surprise. I was so touched. Thank you.

There were several suggestions for improvements to Reasonably Well, which I'll definitely take into consideration. Here's a few to which I can address straight away:

- Post more often. Well, since I try to post every day, I think that's the limit of my abilities at this point. If something really interesting catches my attention, I'll try to put it up. For those readers that have bookmarked Reasonably Well, the bookmark may direct you to an older post. If you click on the top of my page on the words "Reasonably Well", it will automatically refresh the page to the most recent post.

- How can I contact you directly? Wow. I had always intended to add a "contact me" widget, but until I read this comment, had forgotten all about it. I'll get on that right away.
Thanks for the reminder.

- What products do you use for your symptoms? Another great point. When I address this, I'll be looking for input from other sjoggies.

- More information about psoriatic arthritis. Absolutely. I tend to deal with problems that are at the forefront of my attention, and luckily for me, my PsA seems to be quiet for the moment. I'll be looking for opportunities to post more about this disease.

It's very difficult to put into words but I am so appreciative of those of you that take the time to read about my experiences: the good, bad, kooky, weird, crabby, happy......

Sniff. Sniff......Group hug, people.

Thursday, October 13, 2011

There's TWO of Them!

I need yet another plant-my-tired-old-body-in-bed day. I'll hopefully be back to posting something moderately related to autoimmune disease tomorrow.

In the meantime, enjoy the newest Simon's Cat:

Wednesday, October 12, 2011

Another Infestation

I'm not nice when I'm tired.

I was unpacking my stuff yesterday between naps. Slowly. Crankily. Grumpily. That is, until I found one.... two.... and then three of these in my luggage:


Even Julia at her most cantankerous couldn't resist laughing.

Ah, Terese, you mischievous thing.  Best antidote to a crash EVER.

Tuesday, October 11, 2011

Re-Charging

So there I was, just cruisin' along in vacation mode. We were saying goodbye to the relatives before heading over to the airport, when, WHAM. BANG.

I hit a crash of unbelievable magnitude. As in face-first-splat-into-a-brick-wall crash. I had been metering out my energy as the vacation went by, and just the day before was smugly thinking that I had actually done pretty well. That is, until every last drop of energy suddenly evaporated there in my parent's dining room.

So strange, almost surreal. I wobbled my way out to the rental car and poured myself onto the back seat. Even though the temps were unseasonably warm, suddenly I felt teeth-chattering-ly cold. I threw my new Green Bay Packer sweatshirt over my head and wished like heck that I were instantaneously home in my own bed. Over the course of the road trip over to the airport, two flights and one layover, I alternated between being tearful and comatose and nauseous and cranky.

I don't know if Greg and Terese have witnessed a Julia meltdown like this before, but boy, did they get an eyeful.

I'll catch up with y'all tomorrow, after I spend yet another day recharging these old batteries.

Monday, October 10, 2011

A Perfect Day

What a beautiful golden autumn day to finish our vacation.







Uncle John raked up some lovely piles of leaves that were just begging to be jumped into.






Yes. My 77 year old mother still loves to walk around barefoot. You GO, girl!

Sunday, October 9, 2011

I Bagged a Trophy

Want to hear another Julia vacation story?

So we've stayed in several hotels over the last week. Most of them were excellent. Actually, all of them worked out just fine, with the exception of a two night stay in a hotel a few days ago.


It's a really sweet little mom-and-pop type hotel, and we've stayed there before. It has a gorgeous view and the rooms are very comfortable.

But.

On our first night of a two night stay, I awoke at about four AM when I heard a strange little scritch scritch sound over my head. I groggily rolled over and looked up directly into the teensy black eyes of a little mouse, who was perched on top of our bed's headboard.

The mouse and I both jumped in fright. The mouse disappeared in a flash, and I bolted out of bed. I whomped John with a pillow.

Mflsglefuf....What?

John! There's a mouse in our room!

Snorglefaurguff.....That's nice, dear...

Whap!

Jul. I'm sure he's long gone. We'll talk to the hotel people about it in the morning....zzzzzz......

I tentatively got back into bed after turning on every light in the room. I couldn't see where that little guy had disappeared, so I lay back down and pulled the sheets up under my chin.

Don't worry, babe. I'll protect you from that big bad mouse...zzzzzzz....

How reassuring. The thing is, I'm not really afraid of mice. I just don't want to sleep in the same room with them.

So the next day, Terese and I walked over to the office to report the mouse sighting. The two people at the front desk looked meaningfully at each other. As if they had heard this before. "Don't worry, ma'am. We'll get our exterminator over here. Again."

Again??

"Oh, and we'll cut your room charge in half."

Whoop-de-do.

So the next evening, as we were getting ready for bed, John and I made jokes about another mouse visit that night. Terese and Greg were perfecting their mouse squeeks to taunt me over our adjoining balconies. Har har har.

We hopped into bed expecting a good night's sleep. And we did. Until....four AM. Scritch scritch scritch....

Yikes. Mr. mouse was nowhere to be seen, but I definitely could hear him rustling around somewhere. I crept quietly toward the sound, which was coming from the bathroom. Actually, the bathroom garbage can. I had tossed a candy bar wrapper into the garbage, and it seemed Mr. Mousie was intrigued. I watched him nibbling the paper wrapper for a few seconds, wondering what the heck I should do, then carefully lifted the corners of the plastic bag lining the can and twisted the top of the bag shut.

I lifted the wiggling bag containing a little mouse running laps inside it. The plastic was clear, so I could see him frantically jumping around. Poor little guy.

I walked over to John, who was still snoring away, and rattled the bag in his face.

Guess what's in here?

What the heck?

It's the mouse! I caught him! What should I do with him?

Jul. Just put him outside. ZZZzzzzzzz

Ah. Good idea. I opened the door to our room and placed the bag down on the deck, then waited to see what Mr. Mousie would do. It didn't take long before he pushed his way out of the open bag and was gone like a shot.

Towards Greg and Terese's room. Who had half of a rhubarb/strawberry pie in their room.

Bwahahahaha.

Just call me the fearless mousie hunter.

Saturday, October 8, 2011

Sleep Is Good

As expected, I am needing a "put my feet up" day. See y'all tomorrow.

Friday, October 7, 2011

Can Y'all Stand a Few More Pictures?

Whaddya know? We headed north and ran into Lake Superior.




While the rest of the gang elected to go on a little hike, I decided to cool my heels in the car. I didn't know that I had a furry friend nearby. Can you see her? She wasn't frightened of me in the least.




Thursday, October 6, 2011

How Could We Be This Lucky?

Guys. This vacation is rolling along just peach-ily over here. Great weather, good food, wonderful company. I have so many stories to share but am running on fumes after all this chasing around. I'm catching up on my sleep today and just taking it easy in general before we head out on the last lap of our journey. 

Here's a sampling of yesterday's events. 











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