tag:blogger.com,1999:blog-690850457652849477.post6249502214865039025..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Sjogren's and SleepJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-690850457652849477.post-18289502337350854862017-05-04T16:10:01.680-07:002017-05-04T16:10:01.680-07:00I am so grateful to have come across this foundati...I am so grateful to have come across this foundation. I am waiting diagnosis as well as an RA sufferer for 30 years. I am 56 and this has thrown me for a loop. Trying to get educated and learn how to deal with dry mouth and sandpaper throat, a voice that is always hoarse. I have started salagen. It is giving me headaches that are almost unbearable. Please tell me this is temporary side effect. Please tell me I will be able to enjoy life again. Prednisone is the only thing that takes the symptoms away. I know I can't stay on that. I am so sorry for all your sufferings.Donnanoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-8534082298615450322017-03-05T22:21:58.003-08:002017-03-05T22:21:58.003-08:00I am reading this at 1am. I am seeking info pertai...I am reading this at 1am. I am seeking info pertaining to sleeplessness and a second time around herrendess rash on arms and shoulders this time. I have primary Sjogren's. Looking back i had it since my late 20s early 30s. Im now 55. Yes everything you mentioned the eyes the tendon pain (even though I workout), the dryness etc. I use childrens lullabies or soundscapes on my television (when husband not home).i now developed Pulmonary MAC and have more concerns. I also try reading at times. I would use buttered pasta to fall asleep in the past except now i eat a nutritarian diet. It is truly frustrating. Bless you all.Frustrated in Indiana.noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-6220712910038240552014-04-25T23:41:01.873-07:002014-04-25T23:41:01.873-07:00Thank you for posting this :) You described a lot ...Thank you for posting this :) You described a lot of what I experience (although I am waiting on a diagnosis. I see the rheumatologist for the 2nd time next week). I feel more normal reading the experiences of someone else. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-128185827088553392009-07-23T12:12:35.903-07:002009-07-23T12:12:35.903-07:00Excellent and timely post. Last night was one of ...Excellent and timely post. Last night was one of 'those' nights for me too. For once, I fell asleep easily. But come 1AM, Bam! Wide awake. For no good reason. Some Tylenol, a bowl of Cheerios...and three hours of tossing and turning (concentrating on breathing, etc, etc.) finally does the trick. Slept from 4 to a shameful 8AM. (Yes, I do peek at the clock, but how else will I know how tired I've got a right to feel??) So much for good intentions to get an early start today.Wendyhttps://www.blogger.com/profile/07901026275536217683noreply@blogger.com