My user name on Sjogren's World Forums is Annj5. Because all the good Julia names were already taken. If you see me there, say hi!
Ever since I've been whining about my most recent flare, I've heard from lots of other sjoggies sharing that they are dealing with them as well. (For those lucky folks who don't know firsthand what a flare is, read this.)
Autoimmune Gal recently posted: January and early February were a tough time for me. I was in a flare. It started with my eyes going from very dry to completely parched and always painful.......Then the symptoms cascaded from there…neurological symptoms, fatigue, joint pain, you name it.
Kelly commented: It seems to me that often the talk about flares clusters around the time periods when I am experiencing flares as well. Could it be weather patterns/moon phases or just the fact that when we are in a flare we seek the company of those who understand?
Shara said: OMG! I'm feeling better from my flare too!We must be on the same cycle, kinda like periods isn't it! HA! It came in on a full moon.
Sheryl Aronson calls flares "days like this" and describes her most recent one here.
Annie shared: I'm just out of a very long exhaustive funk and just starting to feel better.
Kristen wrote about a recent flare on her site, Sjoggie StAHMer, .... my "mom duties" don't stop just because I am in a flare and hurting.
I strongly suspect a flare is involved after reading Amy's comment: Just this morning I was hurling obscenities. I even Googled the relation between pain and anger.
I entered the word "flare" on the Sjogren's World Forum, and came up with 103 pages of results. Whew.
Is there some kind of global autoimmune flare schedule that my brain doesn't know about but my body does? I distinctly recall my first rheumatologist commenting that it's common to have flares in Sjogren's syndrome when the seasons change, most often spring and fall. I wish I could find some studies or other documentation to support that comment, but I can't, even though I strongly suspect that it's true.
Are you in a flare too, or have had one recently?
Oh, and somebody get Amy some ice cream ASAP. One scoop or two?